This is a clip of my very first ten steps or so out in the Racerunner. It isn’t painted and there’s loads of other adjustments to be made yet. The seat needs to be hight for one and that alone will mean that every other detail will need tinkering. Yesterday we literally had five minutes to try it out before the skies were going to open up and start pouring with rain.
For many people, this clip won’t look impressive or live up to the hype. I can just hear lots of people now going “Oh Athena, you’ve spent all this time and energy on THAT.” And no, I’m not about to run through the streets of London squatting. Although it might look hillarious.
Most people don’t remember learning to walk, but I do. Actually I can remember learning to walk eleven of twelve times over as every time I would have an overnight growth spurt, or get a new pair of orthotics, or a new piece of equipment, it’d be like starting all over again. That’s just life growing up with cerebral palsy. As @hannahrdines told me last week, “it won’t feel the way you’d like at first, but give yourself a month on it and you won’t be recognisable.”
Thinking back to last November, and getting out in my walker in Edale, I know exactly what she means. In six weeks I went from going being able to go twenty yards before wanting to die, to eight tenths of a mile. Since then, it’s become closer to two miles before am completely worn out. That’s how it goes with CP, you never just jump on something and fly off, even an electric wheelchair. there’s always a point where you just go ‘this is insane. It’s crazy for me to suddenly think x (fill in x with anything, knitting, walking, acting, writing a web series, you name it) was a good idea. I should just go back to bed.
The difference is, now that I’m an adult I’ve learned to expect that lie, and to call it for what it is: a lie. The belief that I can just hope on this machine that @mattbowns and I literally made up and just fly is as much of a lie as thinking the whole endeavour is a waste of time. You can’t fall for one or the other, you just have to keep working and know that improvement will come with time.
Next week, the running frame gets shipped off to be painted. I’ve decided to make it hot pink with yellow detailing. The bike I always wanted as a child was like that so it seems like an appropriate choice for my running frame. Not long now until the work starts in ernest… But don’t worry, I’ll be sure to document.
Because it’s a Brave New World out there. Every Day.